My son Cody, who has an Asperger’s diagnosis, has been regressing in several areas over the last year. The first thing I noticed was his handwriting. The first photo is from the beginning of last school year. The second photo is from a few weeks ago. I took him to the eye doctor thinking it may be his vision as he requires a new prescription every six months due to the deterioration of sight in his left eye. They said it was definitely not due to his eyesight. Then I met with his teacher this week on another matter, and she told me his coloring is atrocious. This was shocking. If you look a few posts back, you will see examples of the amazing art he was creating just a couple of months ago. Also noticeable are the loss of his ability to spell even the most basic words, and the loss of his ability to do simple addition and subtraction. This is so troubling because he has been an excellent speller since age three and has been doing addition and subtraction since that age, too. When he was 18 months, he experienced a regression that left him unable to walk and talk even though he was doing both by ten months. He never fully recovered from the regression, but has made tremendous progress including gaining back his speech and ability to walk though he does have to wear orthotics. I am really concerned something like that is going to happen again.
You might wonder why I’m sharing this with you rather than a doctor. Well, I have shared this with his doctor and she has told me to ask another doctor and so the circle begins. This is typical of Cody’s doctors as none of them have a clue what to do with him. I have always had to figure things out on my own and that is why I’m sharing this with you and asking for your help.
Have you ever seen anything like this before? Do you have any suggestions on what it might be? For those of you who have children on the spectrum, is this a common occurrence? I thought he should see a neurologist, but his primary thinks he should go back to his psychiatrist. If this were your child, what doctor would you take her or him to?
I would really appreciate it if you would pass this post along so that maybe someone will see it and can help me figure out what steps to take to get my son to the right doctor rather than traveling around the usual circle without ever getting an answer.